Today she got off the couch! HOORAY LOGGIE BEAR!

I can’t believe how hard this treatment has been on her, not a lot of improvements since surgery and radiation is literally wiping her out! She can’t handle the double treatments. So we are only going to do one per week. Hopefully we are still going to finish in time for Maui.

We are trying to concentrate giving her all the time she needs to heal. She is sleeping most of the days, her energy level is very low but I think sleep is what she needs.

We are all wiped. We are coming down off the adrenaline that has been feeding our bodies and now reality of what is happening is  hitting us all-  hard.

Every one of us is tired. You would think after 3 years of this we’d have a routine down pat, but the reality is it just gets tougher as the time goes on. Less Capacity I guess. Physically, and emotionally every one of us is struggling in our own way. Brody is being a little bugger, he won’t eat anything other than peanut butter- Go figure.

We are not coping with much. Even the medication seems to be hard to manage and is becoming an irritation dealing with organizing it 4 times a day. So we bought one of those pill organizers old people use. At least for the next couple of days before the next medication change we can just grab a container.

We realized when organizing all her medications that she is taking  27 pills a day!!!!! My goodness! Can you imagine taking all of those pills and not being able to swallow on your own. That is a lot of chocolate pudding.

Speaking of chocolate pudding, Logan has been given daily laxatives help her poo. Treatment is making her brutally constipated and cranky. We can’t mix it with pudding because it is a liquid  so we have been mixing it with a thick juice or something fizzy because it tastes terrible. We are letting her drink it  (and watching her like a hawk)  because apparently it doesn’t work as well if we put it through the tube. The whole process is such a pain in the ass (pardon the pun), she hates the taste of the laxative and it doesn’t help that the only thing she is allowed to drink is her ‘poop’ juice.

Last night, she was in a foul mood and simply refused to drink it. I couldn’t argue with her about it so I put it in fridge to try at a later time when she might be more responsive.

But then I woke up in the middle of the night in a complete daze to give her, her medication, and  I was so thirsty. I think you know where this is going…

I opened the fridge and saw the ice glass of cold of mountain dew, and eyes half shut, I chugged down the whole bloody glass…..

Two hours later…..HOLY CRAP!

Well at least we know- the poop juice works.