Ironically we ended this week by completing Logan’s 11th radiation treatment. Another 11- our number.
She seems to be feeling better and we had a few people say she looked brighter. Less lime green and more glow in the dark I guess.
Hoping it is the extra “boost” of reiki that she is getting and not the extra boost of radiaton.
Doctors have started to ween a few of her meds. Thank god. Taking Dex is never good and Loggie has been on a high dose too long. She is quite puffy and it has given her a round face, She is SO CRABBY, nervous, and agitated. She cries all the time for no reason, and she is starving all day long, which means she is gaining weight like crazy (o.k. maybe that isn’t so bad).
So it is time. We will try to lower dose and hope the drugs will still work and the side effects will be less.
Her blood pressure is much better with the higher dose of medication. Today she was close to normal, probably one of the reasons she is feeling so much better, Try functioning with a BP of 50/30.
It has been a long haul and we are aren’t even half way through this treatment yet.
Having said that I have developed some coping skills. Basically I just clean everything. So far I have thrown out 3/4 of my closet, donated 9 boxes of useless junk, and I today I started cleaning the grout around our window sills with vim and a toothbrush.
We all deal with things in our own way I guess. Jared builds things- this week he has started an outdoor kitchen project, in the freezing cold and snow. Optimistic guy.
And Brody, well he has thrown about 57 temper tantrums in the last 24 hours. We have no idea why he is so upset but in all fairness I am pretty sure he doesn’t know either. So he just throws himself on the ground and screams.
We are all coping, and luckily we are allowing each other to do so however they need to- renovations, tantrums and wine, we will get through this.
I put over 900 km’s on my car this week. So much driving to and from treatment. I sure would be nice if we lived closer, or just a bit farther away so we could qualify to stay at the Ronald McDonald house when we have to be downtown so often. The Mega boost is done and next week we will so that means we will only have 20 treatments left to complete- I’ll have to remember to book an oil change.At our meeting yesterday we decided that the Italy chemo (as we call it) will begin on June 12th. Five weeks after radiation is done and after we have had a nice holiday in Maui. Hopefully she will be rested and ready to begin the final leg of this race to the cure.
Her blood counts are really good (surprisingly) and that meant we didn’t have to stay in clinic today to get a transfusion blood. Loggie was mildly disappointed. She is becoming a vampire and looks forward to her infusions. She hoped for a little recreational top up for the weekend but instead she was told to go home and rest- I like that plan. We could use a little down time
