Good news to share- She made it through surgery!

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Feb 21st- SURGERY HAS BEEN DELAYED UNTIL 11AM. There is no bed in the ICU for Log when her procedure is down> Surgery will now complete sometime around  7PM. I will post an update as I have them…please pray for us!

FEB 21 CONTINUED
WOW! Thank you first off for all the love and support that was sent to Logan today.

I am happy to report that it paid off! Your energy, love, strength and amazing commitment to helping her heal…no doubt gave her strength to make it through the surgery- with flying colors I might add.

Most people who had a surgery that involved any area of the brain stem  would still be vented (a breathing tube) and sedated to make sure everything was OK. But our Loggie would have none of that,  only 6 hours post op, She is eating chicken noodle soup, and 2 popsicles. She some how managed to convince the nurses to take out most her tubes and she is sitting up on her own.

The risks of this surgery worried us very much since Logan has a build of up scar tissue from previous surgeries. There was a very real possibility of her heart stopping when the brain stem was punctured…fear overwhelmed us today wondering if we’d ever see her sweet face again. 

Today was an incredible day. I read Logan the messages you all sent to her. I read the well wishes from her caringbridge site and all the emails from her school…she started to cry.

  When I asked her if she was sad or if she had any pain…she shook her head  no.  She mouthed the word happy.

There could never be a more moving or powerful moment in my life. To witness completely and true gratitude for the gift of life and for the gift of those who care about her has left me incredibly humbled.

I learned more today about the importance of gratitude then I will probably learn in my whole life. I pray I never forget it.

 Because she is doing so well, she will be moved tomorrow from ICU to the Neurological ward where she will stay and be monitored for a few days.

The radiation oncologist met with us today during Logan’s surgery and feels we will be able to start radiation on the or about the 3rd of March. That is a week Monday- we are nervous that it isn’t giving Logan enough time to heal but also know we can’t give this tumor time to grow.

Our amazing surgeon Dr Steinbok, debriefed us after surgery. Apparently, Logan’s tumor had once again filled with liquid. Her tumor has a cystic cavity in the middle of it and although the tumor isn’t able to be removed the surgeon was able to drain out that fluid. Picture a balloon that has a slow leak. Without the support of the fluid, the tumor collapses on itself. Although it is the same size- takes up less space freeing up the pressure in the brain stem and causing far less symptoms.

Amazing and I know relieving that pressure makes a huge difference. We are only a few hours post-op when everything is swollen and sore and Logan told me how much better she feels. “Mom I feel better than I have in such a long time”

She is a bit dopey right now, actually she is totally stoned. The morphine infusions will continue to be given each hour through the night to keep her comfortable. I asked the doctor tonight if we should be giving her so many narcotics, it really does seem excessive, but it turns out that kids can metabolize far more opiates than adults (who knew) so she is getting the perfect dose for her little body..

We will have a better idea how she is actually feeling in the morning when we wean her off the painkillers a bit, but I am expecting a full recovery in record time.

We love you all very much and are truly blessed for the care and concern you have for our family…

Thanks so much to all you members of “TEAM LOGAN”  they say it takes a community to raise a child. Apparently it also takes a community to heal one. We  proved that today.

With Love from us to you!

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